Publications

24

Apr, 2016

Neurocognition and quality of life after reinitiating antiretroviral therapy in children randomized to planned treatment interruption” has been accepted for publication in AIDS

 

Authors: Ananworanich J, Melvin D, Ramos Amador JT, Childs T, Medin G, Boscolo V, Compagnucci A, Kanjanavanit S, Montero S, Gibb DM, on behalf of the PENTA 11 study group.

Published in: AIDS: 24 April 2016 – Volume 30 – Issue 7 – p 1075–1081

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10

Mar, 2016

Children and young people with perinatal HIV in Europe: epidemiological situation in 2014 and implications for the future.

 

Authors: Kids to Adults Working Group and Data Management and Harmonisation Group in EuroCoord.

Published in: Eurosurveillance 2016; 21(10):pii=30162.

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26

Feb, 2016

The European Paediatric Mycology Network (EPMyN): Towards a Better Understanding and Management of Fungal Infections in Children

 

Author: Adilia Warris

Published in: Curr Fungal Infect Rep. 2016;10:7-9.

Abstract: The European Paediatric Mycology Network (EPMyN) was launched in 2014 to create a European platform for research and education in the field of paediatric mycology. The EPMyN aims to address the lack of paediatric specific evidence and knowledge needed to (1) improve the management and outcome of invasive fungal infections in children and neonates and to (2) enhance and develop paediatric anti-fungal stewardship programmes.

This article is published with open access at Springerlink.com

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19

Jan, 2016

Response to Planned Treatment Interruptions in HIV-infection varies across Childhood in the PENTA 11 Trial

 

Published in: Aids. 2010;24(2):231-241.

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30

Dec, 2015

When information does not suffice: young people living with HIV and communication about ART adherence in the clinic.

 

Despite mounting evidence recommending disclosure of human immunodeficiency virus (HIV) status to young people with perinatally acquired HIV as a central motivating factor for adherence to antiretroviral therapy, many young people continue to experience disclosure as a partial event, rather than a process. Drawing from two longitudinal, interview-based qualitative studies with young people living with HIV (aged 10–24) in five different countries in low and high income settings, we present data regarding disclosure and information about HIV in the clinic. The article highlights the limits of discussions framing disclosure and patient literacy, and young people’s reluctance to voice their adherence difficulties in the context of their relationships with clinical care teams. We suggest that a clinician-initiated, explicit acknowledgment of the social and practical hurdles of daily adherence for young people would aid a more transparent conversation and encourage young people to disclose missed doses and other problems they may be facing with their treatment. This may help to reduce health harms and poor adherence in the longer-term.

Authors: Bernays, S. Paparini, D. Gibb & J. Seeley

Published in: Vulnerable Children and Youth Studies: An International Interdisciplinary Journal for Research, Policy and Care. E-pub Dec 2015

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12

Nov, 2015

Safety of darunavir and atazanavir in HIV-infected children in Europe and Thailand.

 

Authors: European Pregnancy and Paediatric HIV Cohort Collaboration (EPPICC) study group in EuroCoord.

Published in: Antiviral Therapy 2016; 21(4): 353-8

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18

Sep, 2015

HIV-1 Drug Resistance and Second-line Treatment in Children Randomized to Switch at Low versus Higher RNA Thresholds

 

Authors: Harrison L., Melvin A., Fiscus S., Saidi Y., Nastouli E., Harper L., Compagnucci A., Babiker A., McKinney R., Gibb D., Tudor-Williams G.

Published in: JAIDS 2015 Sep 1;70(1):42-53.

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11

Sep, 2015

I was like, oh my God, what happens if it doesn’t work’?: young people living with HIV, clinical trial participation, and the truth economy accepted for presentation at BSA Medical Sociology Conference

 

Authors: Bernays S, Seeley J, Paparini S, Rhodes T

Published: BSA Medical Sociology Conference, York, 9-11 September 2015 (Paper ID No: W0012148)

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18

Jul, 2015

I am scared of getting caught up in my lie’: challenges to self-reported adherence for young people living with HIV

 

Authors:  Bernays S, Seeley J, Paparini S, Rhodes T and the ARROW and BREATHER trial teams.

Published in: accepted for presentation at AIDS Impact, Amsterdam 28-31 July, 2015 (abstract 3435)

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18

Jul, 2015

Young people, clinical trials and ‘the HIV experience’: What can similarities across time and place tell us about growing up with HIV?

 

Authors:  Paparini S on behalf of Bernays S, Seeley S,  Rhodes T,  Namukwaya Kihika S,Kawuma-Kigawa R, Nakyambadde H, Kabajaasi O and the BREATHER Trial Team.

Published in: 3rd International ASSHH Conference, Stellenbosch, South Africa, 6-9 July 2015.

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