The ECCI congenital cytomegalovirus Registry is a database capturing detailed data on babies with a confirmed diagnosis of congenital CMV in Europe including route of presentation, investigations, treatment and longer term outcomes.

Through European collaboration within the well-established Penta ID network, detailed data analysis of a large cohort of babies within Europe can help better define severity and impact of disease following diagnosis at different stages in the clinical pathway. It is hoped that the data entered will provide a firm base for conducting both interventional studies and studies of potential biomarkers for longer-term morbidity.

This is the list of collaborating institutions:

Institution Country Correspondence
Bambino Gesù Children’s Hospital Rome, Italy Dr Maia de Luca, Dr Patrizia D’Argenio
Fondazione IRCCS Policlinico San Matteo Pavia, Italy Dr Francesca Garofoli, Dr Giuseppina Lombardi, Dr Mauro Stronati
Oxford John Radcliffe Oxford, UK Prof A. Pollard
Imperial London, UK Dr Hermione Lyall
Pennine Acute Trust Manchester, UK Dr Paddy McMaster
St George’s Hospital London, UK Dr Mike Sharland/Dr Suzanne Luck
Plymouth Hospitals NHS Trust Plymouth, UK Dr Oladipo Aworinde
Heart Of England NHS Foundation Trust Birmingham, UK Dr Scott Hackett
Royal Free London NHS Foundation Trust London, UK Dr Marice Theron
Alder Hey Children’s NHS Foundation Trust Liverpool, UK Dr Andrew Riordan
Cardiff and Vale University Health Board Cardiff, UK Dr Jennifer Evans
University Hospitals of North Midlands NHS Trust North Staffordshire, UK Dr Julia Uffindell
NHS Ayrshire and Arran Ayrshire, UK Dr Jon Staines
Brighton and Sussex University Hospitals Brighton, UK Dr Katy Fidler
Homerton university Hospital Trust London, UK Dr Swee Fang
Newcastle upon Tyne Hospitals NHS Foundation Trust Newcastle, UK Dr Marieke Emonts
Royal United Hospitals Bath NHS Foundation Trust Bath, UK Dr Peter Rudd
University Hospitals Bristol NHS Foundation Trust Bristol, UK Prof Adam Finn
Royal Devon and Exeter NHS Foundation Trust Exeter, UK Dr Nigel Osborne
Bradford Teaching Hospitals NHS Foundation Trust Bradford, UK Dr Sunita Seal
Guy’s and St Thomas’ NHS Foundation Trust London, UK Dr Esse Menson
Royal Cornwall Hospitals NHS Trust Cornwall, UK Dr Andrew Collinson

ECCI is currently sustained by voluntary contributions from researchers at SGUL and PENTA-ID.