The combination of rapidly increasing medical knowledge and advances in information technology is allowing researchers to use human health data in ways that were previously unimaginable. Increasingly, the challenge is to find sufficient data to fuel this research.
However, because this data exists in disparate locations and systems, it is generally used in isolation. It is rarely aggregated into larger datasets, meaning its full potential is not being realised. Additionally, privacy, legal and ethical issues related to data use also need to be properly addressed.
European Medical Information Framework – One platform for data discovery, assessment and (re-)use
EMIF was a public-private consortium with 57 partners and ran for 5,5 years, ending June 2018. During this time span, EMIF has successfully improved access to human health data via providing tools and workflows to discover, assess, access and (re)use human health data.
EMIF aimed to develop common technical and governance solutions and improve access and use of health data across Europe.
As partner in this project, Penta supported the creation of governance and operating structures within the consortium, assessment of legal and ethical issues, development and implementation of a common data extraction framework, ICT infrastructure and benchmarking, concept and conduct of paediatric use cases to test the viability of the data sharing platform.
EMIF project activities concluded in late 2019. Project results are due to be published.
This project has received funding from the Innovative Medicines Initiative Joint Undertaking under grant agreement n° 115372 resources of which are composed of financial contribution from the European Union’s Seventh Framework Programme and EFPIA in kind contribution.