Sep, 2021

c4c podcast: The best kept secret of science communication


The conect4children (c4c) project has recently released their third podcast, The best kept secret of science communication. This podcast, with speakers Claudio Fracasso and Lindesyt Hunter, the leads of the c4c communication, dissemination, exploitation and impact assessment working group, focuses on the importance of science communication, how it should be done to be effective and how to overcome the challenge of fake news, and its importance and central role in c4c. You can listen directly to the podcast here.



Aug, 2021

Patient and public involvement in the conect4children project


The active participation of children, young people and their carers is one of the key objectives of the c4c project, which encourages patients and their families to get involved in Patient and Public Involvement (PPI) activities, allowing them to have a say in how research is designed conducted and disseminated.



Oct, 2020

XIII Foresight Training Course: Challenges for Researchers and Regulators Facing The Pandemic Crisis

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Fonazione Gianni Benzi, a partner of c4c, proudly brings you this training session focusing on the proposed European Union Pharmaceutical strategy which intends to improve and accelerate patient access to medicines.   This training will include discussions on how the COVID-19 pandemic has changed some of the pillars of the Regulatory System and the Pharmaceutical Market in order to address patient issues and become more efficient and closer to patient needs.   Regulatory Agencies representatives, experts from companies, healthcare professionals, researchers and patients’ groups will also be sharing their contributions […]



Jul, 2019

Get involved in c4c!


We encourage patients and their families to get involved in c4c activities. If you wish to be part of the c4c pool of expert patients, you can find out more by following the instructions here!



Apr, 2019

c4c Consortium selects inaugural Research Portfolio


We are delighted to announce the selection of the c4c consortium’s first portfolio of pan-European paediatric studies aimed at advancing the understanding of high priority medicines commonly used in babies, children and young people in Europe. The four inaugural studies will be conducted by academic institutions, in addition to three or four studies by industry partners, covering different diseases and age groups. The selected studies will implement new ways to: • Ensure that the experiences and preferences of children and young people are reflected in clinical trial design and minimise the burden […]



Feb, 2019

Rare Disease Day – 28th February 2019


The countdown has begun to Rare Disease Day 2019 on 28th February. People around the world are joining the global movement for rare diseases by taking part in the #ShowYourRare campaign, holding events and raising awareness. This year’s theme is ‘Bridging health and social care’, and it is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better coordinate all aspects of care for rare disease patients and families.


We would like to update you on our recent activities