c4c

Between 13^th-15^th June 2022, around 140 beneficiaries of the c4c consortium met in Ghent Belgium for the c4c General Assembly. This was the first time since 2019 that the consortium has been able to meet altogether in person.

The General Assembly was a great opportunity for colleagues to meet again (or for the first time!) and to collaborate further for the benefit of the c4c network.

The conect4children (c4c) network is a large collaborative European network that aims to facilitate the development of new drugs and other therapies for the entire European paediatric population. The active participation of children, young people and their carers is one of the key objectives of the project and it therefore encourages patients and their families to get involved in Patient and Public Involvement (PPI) activities, allowing them to have a say in how research is designed conducted and disseminated.

Fonazione Gianni Benzi, a partner of c4c, proudly brings you this training session focusing on the proposed European Union Pharmaceutical strategy which intends to improve and accelerate patient access to medicines.

This training will include discussions on how the COVID-19 pandemic has changed some of the pillars of the Regulatory System and the Pharmaceutical Market in order to address patient issues and become more efficient and closer to patient needs.

c4c (conect4children) is a large collaborative European network that aims to facilitate the development of new drugs and other therapies for the entire paediatric population.

The voices of children, young people and their families are a pivotal part of the c4c project. It places patients at the centre and will assign them an active role in the development of the different clinical trials that are going to be carried out during this project.

A key concern of the conect4children (c4c) consortium is that strong communication and dissemination efforts need to be put in place in order to reach the widest possible audience. They are seeking experts specialised in communications that can assist in promoting project activities and bringing knowledge on paediatric research to the wider public.

As a result, they are issuing an open call for tender for subcontracting a “Specialised Communications and Media Agency”.

c4c (conect4children) is a large collaborative European network that aims to facilitate the development of new drugs and other therapies for the entire paediatric population.

In this sense, the voices of children, young people and their families are a pivotal part of the innovative approach of c4c project. It places patients at the centre and will assign them an active role in the development of the different clinical trials that are going to be conducted during this project.

We encourage patients and their families to get involved in c4c activities. The active participation of children, young people and their carers is one of the key objectives of the project. Some good examples of activities in which patients will be involved include protocol revision and meetings to discuss paediatric unmet needs. If you wish to be part of the c4c pool of expert patients, you can find out more by following the instructions here!

We are delighted to announce the selection of the c4c consortium’s first portfolio of pan-European paediatric studies aimed at advancing the understanding of high priority medicines commonly used in babies, children and young people in Europe. The four inaugural studies will be conducted by academic institutions, in addition to three or four studies by industry partners, covering different diseases and age groups.

The selected studies will implement new ways to:
• Ensure that the experiences and preferences of children and young people are reflected in clinical trial design and minimise the burden of their participation in research
• Employ cutting-edge science and implement new,

The countdown has begun to Rare Disease Day 2019 on 28th February. People around the world are joining the global movement for rare diseases by taking part in the #ShowYourRare campaign, holding events and raising awareness.

There are over 6,000 rare diseases. The European Union considers a disease as rare when it affects less than 1 in 2,000 citizens. 30 million people are living with a rare disease in Europe and over 300 million worldwide.